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Leah is a 30 year old woman who was found after a fall from a considerable height. She was initially unconscious, then regained consciousness and was transported to hospital. It appears to be an isolated TBI.

When assessed in the emergency department she is awake and interactive with no apparent neurological deficits but is obstructive and won’t allow a detailed neurological exam to be performed and refuses a CT brain. She is deemed to have capacity and self-discharges from hospital.

She subsequently collapses and is brought back to hospital unconscious, GCS 3 with a fixed dilated pupil.

A CT brain reveals a large extradural haematoma.

She is empirically treated for EICP and taken to theatre for urgent evacuation of the EDH.

She is then brought to ICU sedated, intubated and ventilated with an EVD in situ.

Her family want to meet to discuss what has happened.

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Who should attend this family meeting? What should be considered before going to the meeting?

Who should this initial update meeting attend:

  • Bedside nurse looking after Leah
  • A medical representative from ICU, ideally the most senior available
  • A representative from emergency medicine who can explain what happened during her initial presentation
  • Social worker if available
  • A representative from the Neurosurgical team if available

Things to consider:

> Her family will be traumatised and frightened

> The family may be angry and have questions about her initial presentation

> They may immediately have questions about prognosis

> Open disclosure about the inappropriate discharge from hospital will be necessary

Here’s how the conversation went

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In ICU Leah continues to deteriorate. Despite the EDH evacuation her ICP’s are > 30 mmHg.

She receives all the tiers of EICP management including a thiopentone infusion.

As part of this she has a repeat CT which shows severe cerebral oedema, loss of grey-white differentiation and uncal herniation on the right and early signs of tonsillar herniation.

Her ICP remains 30 mmHg.

On examination she is GCS 3, has fixed dilated pupils and is not triggering the ventilator.

She has become coagulopathic and the neurosurgical team feel a decompressive craniotomy is not appropriate.

Is she dead?

At this stage you don’t know.

The thiopentone, other sedatives and paralytics she has received make her clinical exam uninterpretable.

She cannot be neurologically determined dead at this point.

However her prognosis does look very grave.

We will go on to talk about what death is, how it is diagnosed, how we communicate with families under these circumstances and the practicalities of managing death.

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